This week has reared up and bitten me in the butt. The weather and the pressure fronts are to blame, mostly, and I’ve tried hard not to be insufferable to live with, but I am not the do-nothing type. I don’t do down time well. Living with an invisible chronic illness really stinks. A lot.
We all basically forget I have this thing. I have weeks and even months at a time that are good and I have virtually no issues that force me all the way down. We all get used to me doing all the mom things, doing all the this and thats, driving the mom taxi, running the errands, making dinners and cleaning house. Then a front will move through and weather will sneak up and it will bring with it a particular brand of harshness that seeps into my bones and changes me from the inside out.
I have something called Chiari Malformation. It’s a fancy name for “Squished brain” because my brain is too big to fit into my skull and it squishes down into the brain stem, causing nerve issues and pain galore. There is a day-to-day factor of this thing I live with, but mostly it’s livable. In general no one would know I have an issue. When these pressure fronts move in, however, things change. I’m sidelined, taken out of the game, subs put in.
This week my family got their reminder because the coach had to play them. I’ve been benched and the couch is where I’m doing all my parenting and have-to’s from. It stinks. They’ve really stepped it up this week, however, and I have to say I’m really proud of them. In spite of why I am seeing it all, it’s nice to know that they can take over and keep things going, doing the cooking and the chores, getting gone what needs done, and doing it all without a single complaint.
Thanks guys. When a mom is sidelined, it’s really hard. Knowing that things won’t fall apart and that you’ve got it covered really does ease the pain more than you’ll ever know.